@kimpate70: #chronicillness #sick #hypermobileehlersdanlossyndrome #craniocervicalinstability #dysautonomia #chronicpain #medical #fyp #foryoupage #fypシ

Kim Pate 70
Kim Pate 70
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Region: US
Saturday 22 March 2025 05:10:51 GMT
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bearytrish
bearytrish :
Did anything show up on Xray ive had neck pain headache and migraines daily. waiting on referral to get MRI.
2025-05-30 20:17:33
3
ash.garofalo88
ASHLEIGH G :
Hi, i’m so sorry you are going through this! Have you heard of Dr. Centeno Schultz, he does what’s called a PICL procedure for people with CCI instead of a fusion. I had my first stem cell PICL done in March this year, and it has improved some of my cci symptoms. You should look into this, my sister had to get a C-0 through C-2 fusion, and we decided to go the non surgical route with me to see if it helps!
2025-05-14 03:08:06
11
user325052100
Kacy Clark :
I was chastised by the Tennessee so called medical professionals who said that it just weakens the muscles but offers zero solutions or opportunities or even decent alternatives options and bedside manners which don’t exist here for the majority of “groups “
2025-10-29 02:07:58
2
kylagreenhut
Kyla G. :
I have a c1-3 fusion. It saved my life
2025-03-22 21:35:20
9
bonniedoes
bonniedoes 🇵🇸 :
I have this and have had two 0-c2 fusions
2025-05-14 02:09:07
3
glittertxmes
glitter10367 :
Can you please share some symptoms??
2025-04-01 01:33:34
1
amandajminot
Amanda Jordan| NC Silversmith :
Is the neck brace helping??? I got denied for an upright MRI but I’m pretty sure this is what I’m suffering with :(
2025-03-31 14:43:27
18
patient_to_provider
@patient_to_provider :
In the same exact boat🥺❤️CCI/AAI, hEDS, ventral brainstem compression, chiari 0, pots, chronic migraine, MCAS, multiple concussions🫠 sending you allll the love and hugs❤️here if you need to talk
2025-03-24 21:28:09
19
partially_clown
🐓🦴That Bone Bird 🦴🐓 :
Did hers show up on a normal X-ray? They said I don’t have it but I have to manually pop my bottom vertebrae into the right place with my fingers because the literally slide to the side.
2025-04-06 00:07:53
1
ednagudino
Edna Gudino :
I’m sorry you’re going through this- if you haven’t already, I would highly suggest finding an upper cervical chiropractor that specializes in Atlas Orthogonal or Blair Technique!
2025-05-02 15:45:23
6
._.mylo
((: mylo :
wait what r symptoms of this ??
2025-05-09 02:15:00
0
brandiipaigee
Brandi Simpson :
What were your symptoms in your neck
2025-03-23 06:26:34
10
awktistic
Ris :
I was diagnosed based on physical exam but they won’t do upright MRI
2025-04-21 00:16:49
1
braaaap_mama
braaaap_mama :
I just stumbled on your videos. My daughter is 13 with Chiari, hEDS, and CCI (120° in neutral position, so they think worse on flex/ex). Dr. Greenfield is her NS, and Dr. Gerald Grant at Duke dx her instability. She’s stuck in a 15 day flare. Missing so much school. She did intensive PT back in 2022 that changed her life and helped so much. I can’t get answers from either NS.
2025-05-16 16:53:07
3
nikki3475
Nikki :
Did a doctor fit you with that neck brace? I have cervical instability due to my hEDS and I have tried two different braces and I feel like none of them fit. I think I have a short neck, they all seem way too tall
2025-05-18 04:23:22
1
amandasmith7175
🤍MANDY🤍 :
I was diagnosed with a C1 fracture this week, I know it’s not the same as what you have. But I am struggling with this collar. It’s causes me to have even more pain. If you have any advice or tips please let me know. I have the Aspen Vista
2025-06-05 01:35:56
3
hairqueen611
Amanda :
hang in there I found out I had heds at 37 . I just had a spinal fusion at 38 c5-c7. good luck hang in there.
2025-03-25 00:21:10
5
courtneymenglish
Courtenglish :
Do they have an upright mri machine at John’s Hopkins?? What doctor did you see? Currently looking like I have CCI and I’m miserable
2025-07-05 17:20:55
0
nanettekeepsherheadup
Nanette :
i had a fusion and it literally saved my life. only do it if the neuro symptoms get outta hand though. it can be rough not being able to move your spine 🙃
2025-04-13 06:52:27
3
naenaepaw
Luv my furry bf melon beastars :
Me too girl 💔
2025-06-03 10:23:47
1
lessiestanleyrich
Lessie Stanley Richa :
My daughter was dx and has similar story. We started using supplements and aloe Vera from the Cusuak protocol for EDS. Also oxygen chamber therapy has helped . Mold triggered my daughters.
2025-05-15 05:26:55
1
apatientadvocate
Ashton Nesmith-Kochera :
Have lived with this for over 20 years now. I know how frustrating it is. I hope I can continue to avoid surgery.
2025-03-26 23:25:41
1
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